JoAnne Keatley: The next
presenter, Dan Karasic, MD is an Associate Clinical Professor of
Psychiatry at UCSF, and attending psychiatrist for AIDS care at
San Francisco General Hospital (SFGH). He is the HIV specialist on
the psychiatric consultation liaison service, a psychiatrist for
the SFGH Positive Health Practice Ward 86, and for the UCSF AIDS
Health Program. He is also psyciatric consultant to the St. Mary's
care unit for the treatment of AIDS dementia. Dr. Karasic is chair
of the Northern California Psychiatric Society's committee on
lesbian/gay/lesbian/bisexual/transgender issues. He is a member of
the LGBT advisory committee of the San Francisco Human Rights
Commission, and the UCSF Chancellors Advisory Committee on LGBT
issues. He has chaired workshops and symposia on transgender
issues for the American Psychiatric Association, and the Northern
California Psychiatric Society. He has given grand rounds on
transgender issues at San Francisco General Hospital, and at UC
Davis. It's my pleasure to introduce Dan Karasic.
Dan Karasic: Thank you, thank
you (applause). You know, in all the talks I've given I don't
think my job has ever been easier than it is today, especially
with the Community
Panel, which I think at the end of the day will have
taught you far more than my lecture. I trained in Psychiatry in
the 1980's at UCLA, where among the faculty there were two of the
more famous people in transgender issues -- not necessarily
entirely in a good way, Bob Stolar and Richard Green. And in
hearing their lectures on transgender issues, and also hearing
them talk about Gay and Lesbian issues and I identify as a Gay
man, I even then had certainly a lot of questions about some of
those formulations. And, in my work since 1991 as an HIV
Psychiatrist at San Francisco General, the inadequacy of the
models that we as mental health professionals are trained in
really became apparent. (View
the slide)
So, we're gonna start by talking about
models for exploring one's patient's or client's gender identity,
as a Primary Provider. And I'm gonna start by talking about the
DSM Mental Disorder Model, and talk a little bit about why I don't
think that that's particularly useful. Talk about transsexualism,
the traditional transsexualism and the binary perspective of
gender, and then about at anthropology and cross-cultural models
for working with patients and clients generally. And looking at
that as a framework for exploring your patient's gender identity.
And then Laurie Kohler is gonna come and give the second part of
this talk -- as Primary Care Clinician -- on exploring people's
gender identity as Primary Medical Provider. (View
the slide)
So, there are a lot of problems with
the way psychiatry has viewed transgender folks, and the problems
include belief in, in knowing what the etiology of what
transgenderism is. In psychodynamic theories that have been long
discarded in terms of understanding homosexuality, they're then
applied to transgender folks. In labeling an identity as a mental
disorder, as opposed to identifying symptoms in the same way we do
for, say, major depression, or anxiety disorder, or other
disorders in the DSM. And the consequence of this, which is
pathologizing and really hurting our clients. (View
the slide)
So this slide has a lot of text on it,
and I don't expect you to be able read it. But the point of this
text is that the APA has struggled with what a mental disorder is.
And this comes from -- is in your DSM near the beginning -- their
attempts to describe what a Mental Disorder is. It says that each
Mental Disorder is contextualized as a syndrome that occurs in an
individual associated with distress or disability impairment in
distress, a painful symptom with disability impairment and
functioning, or with significantly increased risks of suffering,
death, pain, disability, or freedom. And so this syndrome or
pattern must not merely be an expectable and culturally sanctioned
response to a particular event such as death of a loved one.
(View
the slide)
So now the really operative part of the
DSM's description of a mental disorder is in this last paragraph.
Whatever its original cause, it must be considered a manifestation
of the behavioral, psychological or biological dysfunction in the
individual. Neither deviant behavior, ie., political, religious,
or sexual; nor conflicts that are primarily between an individual
and society are Mental Disorders. Now it would kind of be great if
it just stopped there. But then it kind of has this little lost
bit. Unless the deviance at conflict is a symptom of dysfunction
in the individual as described above. And, which gives -- which
not only confuses the whole picture -- but basically says that
it's up to the clinician to determine whether it's the
individual's fault or society's fault that the patient is
miserable, in determining whether this is a mental disorder or
not. And that really is what it comes down to.
So, the DSM lumps the gender identity
disorders in the section of the book called Sexual and Gender
Identity Disorders, and that includes include sexual dysfunction
parafilias which are basically fetishes, and sexual disorder not
otherwise specified, which is the diagnosis that, that can be
given even to gay and lesbian people, if the provider really wants
to bill for reparative therapy. (View
the slide)
So Gender Identity Disorder results
says that some persistent cross gender identification -- not
merely desire for perceived cultural advantage of being the other
sex. In adolexcents and adults the disturbance is manifested by
symptoms such as a big desire to be the other sex, frequent
passing as the other sex, desire to live or be treated as the
other sex, or the conviction that he or she has the typical
feelings and reactions of the other sex. So it certainly is a
description that applies to a lot of transgender people. (View
the slide)
Persistence of comfort with his or her
sex or attempts of inappropriateness in the gender roles of that
sex. And that the disturbances manifested by symptoms such as a
preoccupation with getting rid of primary or secondary sex
characteristics. Or a belief that he or she was born in the wrong
sex. (View
the slide)
Then it says that the person -- this
doesn't apply to unisex people, and that if this little depart
that it qualifies for some other disorder -- that the dysfunction
is the responsibility of the individual as opposed to society,
basically. Clinically significant distress or impairment in social
and occupational areas of functioning -- because of dysfunction in
the individual. (View
the slide)
Now, what, of course, this description
leaves out is the fact that social and occupational impairment and
functioning is not something that you can separate between an
individual and society; and certainly not when people have a
disorder, or when people are diagnosed with a disorder because of
psycho/social distress, and they're living in the society that is
as oppressive as our society is to transgender people. And, we
kind of thought that the American Psychiatric Association, and
organized Mental Health had learned this lesson in 1973 in taking
homosexuality out of the DSM. And a lot of the rationale for
taking homosexuality out of the DSM was it was true that gay and
lesbian people at the time by and large were a pretty distressed
lot of people; but that their distress was mainly about not having
civil rights and being thrown in jail and not being able to keep
their jobs -- as opposed to some sort of inherent, you know,
problem mentally. (View
the slide)
So, I have a few slides from the
Transgender Community Health Project to speak about, because I
think it's such amazing work that they did. And, this is just
showing even in San Francisco, tolerant city that we are, that
most transgender people do suffer a pretty significant amount of
oppression. (View
the slide)
And this is a slide of a couple in
Vallejo -- Jimmy and Sandy. Jimmy grew up in that Vallejo
neighborhood, and you know, is an FTM man, a trans-man; and
because he grew up in that neighborhood and he was known to be
transgender, the neighbors have attempted to set his house on
fire, have thrown heavy metal objects at him, have really harassed
him and his fiancee -- at least his fiancee at the time and
they're child or children, so much so that that the family was
barricaded in their home. So, in this article that was in the
Examiner about it Jimmy wasn't able to go to his Auto
Mechanic Training School and was not able to go work. They had put
off their wedding, and basically everything in their life was on
hold. And one might say, if Jimmy came in, that he was somebody
that was pretty distressed, and was having, because he was
transgendered, pretty significant impairment in his social
function -- he was not able to hold his wedding, and occupational
function -- not able to go to auto mechanic school. But because of
that impairment it's because he is afraid his house is gonna be
burned down, and he is going to be hit over the head if he leaves
the house -- it's hard to say that that the distress is related to
internal conflict about his gender identity as opposed to a
societal oppression. (View
the slide)
The DSM also has a -- in the same
gender identity sort of diagnosis it has the criteria for
children. In which the child has to be four of the following:
repeated stated desire to be or insistence that he or she is the
other sex, in boys a preference for cross-dressing simulating
female attire, in girls insistence on wearing only stereotypical
masculine clothing; strong and persistent preferences for
cross-sexual roles in make-believe play or persistent fantasies of
being the other sex; intense desire to participate in the
stereotypical games or pastimes of the other sex, and strong
preferences for playmates of the other sex. (View
the slide)
Well, these criteria which, I think
came out of the feminine boys study in UCLA in the 1960's
primarily, is really stuck in 1960's, and even previous gender
role stereotypes. And only the first one even has to do with
gender identity, and the rest just have to do with a range of
gender expression even, you know, that may or may not be related
to how the person identifies gender-wise. And certainly many of
these things that are considered symptoms are really quite normal
and healthy things for a child to not be bound by societal sexism
in terms of choosing how to play.
And the Criteria B also includes the
assertion of penis or testes are disgusting with will disapeear,
you'd be better off not to have a penis. Or they -- or -- so it
could also just be aversion to rough and tumble play and rejection
of male stereotype toys, games, activities. And for girls it can
be rejection of urinating in the sitting position assertion that
she has or will have a penis, or the assertion that she doesn't
want to grow breasts or menstruate -- because we all know that all
girls want to menstruate [laughter]. Or a marked aversion toward
normative feminine clothing. And I suppose it's up to the
diagnosing, treating physician or really the parents who bring in
their children to get this diagnosis as to what rough and tumble
play, or normative feminine clothing is. And lo and behold, and
even in following up the people from the feminine boys study and
other studies, most people, most children given this diagnosis
don't identify as transgender as adults. And it just shows that
there's a range in -- in gender expression in childhood that
doesn't upset children nearly as much as it upsets their parents.
And, certainly those who saw "Ma Vie En Rose" really had a great
display of that. (View
the slide)
But psychiatry really had a real
arrogance, I think, especially in the, in postwar Europe -- coming
out of a kind of superhuman view of psychoanalysis. And this is
from a comic book that I have from the 1950's. And it was -- the
comic book series was called Psychoanalysis. And the
Psychoanalyst is really -- he looks just like Clark Kent, doesn't
he? [laughter] And sure enough, he almost morphs into a superman
with x-ray vision as he gets to -- the very first patient he gets
is a boy brought in by his parents because his father is very
distressed that he prefers more feminine childhood activities as
opposed to wanting to play football. And the analyst is very
empathic, but ends up interpreting a dream where he's, the child
is afraid he's gonna be killed by his father. And then on the way
out the boy notices the Sports Section in the waiting room and
says "Gee Doc, can I borrow that?" And there's really been a quite
miraculous little cure there. (laughter)(View
the slide)
So, the DSM also has this GIDNOS that
includes intersex people. Number two is kind of interesting --
transient stress related cross-dressing behavior. So people who
only cross-dress when they're stressed out [laughter]. Or a
persistent preoccupation with castration or penectomy, without a
desire to acquire the sex characteristics of the other sex. (View
the slide)
So, and additionally there's -- in the
paraphilias is this transvestic fetishism which applies only to
heterosexual men and heterosexual men who cross-dress. And what I
think those of us in practice have found is that the line between
a cross-dressing, heterosexual man and a trans-woman lesbian is a
much thinner line than this placement as a fetish portrays. That
certainly people cross-dress for a lot of different reasons, and
it's not just as an erotic tool for straight men. Certainly there
are people who are diagnosed with transvestic fetishism who are
later identified more broadly as transgender, or even
transitioning. (View
the slide)
So anyway, I hope I've gotten some of
your sympathy of what I had to work with in coming as a
Psychiatrist and having to take care of as many transgender people
as I have over the years at San Francisco General. And an
alternative model certainly in popular culture that is maybe more
relevant, but has its limitations is the traditional transsexual
story of Christine Jorgenson and Renee Richards -- probably the
most famous folks in that model. And, I think that model has been
limiting for me, too. It assumes a Western binary view of culture
that I think doesn't apply to everyone. And it assumes a
progression in transitioning that I think doesn't apply to
everyone. Certainly with the Community Panel, you saw that there
was certainly a range of ways in which people express their
gender. But this traditional model was the man born in a woman's
body, or the woman born in the man's body. And there's simply the
medical solution of hormonal and surgical correction, and then
everything is made right and the person can slip back into society
as a man or woman of the, you know, the gender other than that of
their original genitalia. And without really disturbing society's
view of what gender is. And I think what's really in our popular
culture, or particularly in terms of, actually more in terms of
queer studies that kind of exploded some of this -- is
anthropological views of gender in other cultures. And as well as
looking at our own community, in that within the transgender
community there are a lot of folks who don't necessarily fit that
model. (
View the slide)
You've kind of seen this already, but
just to see this with the lens that, you know, certainly here in
San Francisco people are very split in terms of how they identify.
(View
the slide)
Whether it's primarilly as transgender
-- this is for male to female folks -- as female, as transsexual,
bi-gender, cross-dresser. (View
the slide)
For female to male transgender male,
transsexual quite evenly split. And in terms of sexual orientation
that many MTF's are identified as bisexual and some as gay
lesbian. (View
the slide)
And particularly with female to male
trans-people -- that just from the Transgender Community Health
Project , 50% of the 122 people identified as gay bisexual men.
(View
the slide)
And, so we see where even in our
culture with our own kind of cultural straightjackets of gender
that transgender people are really kind of staking out frontiers
in gender. But if we look in other cultures, such as Native
American culture, the Mahu of Polynesia, and actually in every
continent you can find transgender folks where in traditional
societies there are quite set rituals for men and for women, and
where if you study these rituals you can see that there are a
third set of rituals for transgender folks that are apart from the
other two. And in some societies it's a very respected position,
in others less so. But that it really -- the way in which people
whose gender expression is different from the extremes of male and
female -- the way that expresses itself is very much a product of
culture. (View
the slide)
In our population we take care of in
San Francisco, in addition, we do have certainly, and you probably
saw one of the slides there from the Transgender
Community Health Study that it is a very culturally
diverse population. And what I'm going to postulate is that in the
same way that you look at cultural competence in a culturally
competent way, you look at the other aspects of the individual.
But you look at their gender expression and their gender identity
in that same way.
And I just have a little picture of
Mahu from Hawaii here from "Tapestry." (View
the slide)
And actually, the American Psychiatric
Association, if you just look elsewhere other than in some of the
DSM diagnoses, actually had some good things to say that we can
apply to transgender folks. So this is from the APA's Practice
Guideline on the treatment of adults. And it says, "Considerations
for socio- cultural diversity: the process of psychiatric
evaluation must take into consideration and respect the diversity
of American subcultures and must be sensitive to the patient's
ethnicity, place of birth, gender, age, social class, sexual
orientation and religious/spiritual beliefs. Respective evaluation
involves an impassive, nonjudgmental attitude towards to the
patient's explanation of illness, concerns and backgrounds."
(View
the slide)
"An awareness of one's possible biases
or prejudices about patients from different subcultures, and
understanding of the limitations of one's knowledge of skills in
working with such patients may lead to the identification of
situations calling for consultations with a clinician that has
expertise concerning a particular subculture. Further, the
potential effect of the psychiatrist's socio-cultural identity on
the attitude and behavior of the patient should be taken into
account in forming a diagnostic opinion." (View
the slide)
And in the DSM itself it has this
outline for cultural formulation, cultural identity of the
individual, including culture of origin, host culture and
language, cultural explanations of an individual's illness,
cultural factors related to the psycho-social environment and
levels of functioning. (View
the slide)
Cultural elements of the relationship
between the individual and the clinician, e.g., differences in
culture and social status between the individual and the
clinician. Difficulty in determining why the behavior is
pathological. And overall cultural assessment: how culture
influences diagnosis and care. (View
the slide)
And it's not much of a stretch, then,
to really add gender expression into this. Cultural identity of
the individual and conceptions of gender are including that of the
cultural origin and the host culture -- that means here in the US.
Relationships between culture gender issues and presenting mental
health concerns or symptoms. (View
the slide)
Culture gender and the relationship
between the individual and clinician. The example given is
differences in cultures, social status, and perceptions of gender
identity or behavior, factors related to psycho-social environment
and levels of functioning, and the overall assessment of how
culture and gender identity or behavior influences diagnosis and
care. (View
the slide)
And I think if you're going from a
cultural competence model, rather than a pathology model, it makes
it much easier to level the playing field between the doctor and
physician [patient]. And this is -- these are guiding principles
of culturally competent care from the cultural competence
standards in managed care mental health for under-served and
under-represented racial ethnic groups. So it says that what's
needed for culturally competent care includes culturally competent
providers, consumer driven systems of care, community based
systems of care, including familiar and valued community
resources, natural support, collaboration and empowerment in
determining the course of treatment, opportunities for feedback
and responsiveness to feedback, access to care, and integrated
care. And I think all of these that were written without thinking
particularly about transgender folks apply to this population as
well. (View
the slide)
And then just lastly, this slide comes
from another another talk, but the additional thing is -- I think
with this model that care providers will question their role as a
gatekeeper to care and not unduly focus necessarily on someone's
gender identity when the patient comes to see you because they
stubbed their toe, or they have an upper respiratory infection.
(View
the slide)
So, next I'm going to ask Laurie Kohler
to come up, and Laurie's going give a description of a Primary
Medical Clinician's assessment of gender.
JoAnne Keatley: Thank you, Dr.
Karasic. Let's see, Laurie Kohler, MD, is the Medical Director of
Family Health Center at San Francisco General Hospital. She's an
Assistant Clinical Professor in the UCSF Department of Family and
Community Medicine and works for the San Francisco General
Hospital Family Practice Residency Program. Dr. Kohler has
provided primary care for transgender patients since 1994. She
worked at the Tom Waddell Health Center Transgender Clinic during
its first four years, and continues to see transgender patients at
the Family Health Center. Dr. Kohler also developed a Clinic for
transgender inmates at the California Medical Facility in
Vacaville and served as a consultant for the California State
Prisons. She is committed to increasing access to Primary Care for
transgender people through education and advocacy. It is my
pleasure to introduce Laurie Kohler, MD [applause]
Lori Kohler: Hello. What I want
to do will be somewhat repetitious of what Dan spoke about, but I
want to offer a perspective that a Primary Care Provider, whether
you are a physician or other type of care provider for transgender
people, can -- something that you can use that would support a
collaborative decision-making process. Because I think the reality
is that for most of us in the room, when I looked at the
participant list, that probably our patients or clients don't have
access to therapists or access to psychiatrists; and whether we
believe in that model or not, we really can't depend on it. And
what that leaves for us to do is to help our patients in
decision-making processes. And -- so we need some tools to do
that. What I think is the nagging concern in the back of our minds
is really that if we're gonna make a mistake. I think that's the
worst thing. We don't want to sort of guide someone and misdirect
them, possibly treat them when it's not appropriate, and then be
stuck with some of the permanent consequences of say, providing
hormone therapy.
And this is challenging because there
are lots of complicating factors about being transgender and about
gender itself. Obviously it's really the way we feel about gender
that we bring to any encounter, that we bring to any visit with
someone that we're working with. And so we have really a lot of
work to do to explore that, because we have to understand how we
feel, in order to be able to really understand what's going on for
the people that we're working with.
Obviously, gender is really complex,
and I don't claim to know that much about it myself. I think that
a lot of academicians have tried. There are lots of Ph.D.
dissertations that have been written, and there are probably just
as many theories about gender as there are Ph.D. dissertations. I
think also that, you know, of course, the popular press has
capitalized on it -- journalists, talk shows. But the reality is
that no matter no planet men are from, or what planet women are
from, we just need to come down to earth and look at some of our
own stereotypes, our own perceptions of gender, to be able to move
forward and to begin to understand what it means to be
transgender.
Most of us weren't really raised to
think about transgender. We just think about boys and girls, and
whatever the confusing adult life that comes after that. But I
think that probably there was more time in our childhood that was
spent reinforcing traditional concepts of male and female than
probably was spent teaching us about any other subject in the
world. And this was done either covertly, or overtly. I happen to
come from a really liberal and permissive family, but when I
graduated Junior High School, my graduation gift was a charm
school course that lasted through the summer. And, what -- the
reason I was told that I getting this lovely gift, was my sister
said, "Well, I called and I told them my sister walks like John
Wayne. Can you help her?" And it didn't turn me into a lady. It
did make my summer somewhat more interesting because I had a big
crush on the teacher, and so I had that to kind of fantasize
through the summer.
Clearly, other people have had much
more extreme intrusions into their development, and what they
really represent are just feeble attempts to force us to adhere to
society's strict and narrow gender boundaries. I think that from
the perspective of someone that's transgender, even if you're very
gender adherent -- meaning traditional -- and adhere to all of
those boundaries, being transgender, that really the mere fact
that the transgender person exists is difficult for most people to
conceptualize. So you're challenging that very, very primal
assumption, or understanding that we think we have about men and
women.
So even I think today we all probably
have good intentions. And Dan and I looked at the list and we
said, "Oh, we're preaching to the converted." I think that if we
even -- for those who think we might even begin to understand what
it means to be transgender, or to understand about gender, we
probably really don't. And, it's such a confounding issue that I
think what we really have is a lot of unlearning to do. To go
backwards to try to get back to some really basic ideas, and try
to open our minds to new ones.
So what I want to try to do is figure
out a way to sort of join what we understand intellectually in the
kind of sort of academic viewpoints that Dan discussed, and then
combine that with what we know politically about gender -- because
obviously some of the ways that we behave are clouded by ways that
we try to be politically in sync. And then to go on to our gut
reaction, which really dominates most of our behavior and most of
our responses. And I think we have to put all that together to
make ourselves more accessible to the transgender people that we
work with.
It's, I think, a long process, and it's
not just gonna be magically changed today. But I think we have to
recognize that our relationships with all people are structured
around power dynamics between men and women. And so when the
gender ambiguity exists, that exists for transgender people, the
whole process of relating to other people has to be reorganized,
because we can't fall back on those basic power structures that we
rely on. And we all do rely on those. I think that if we really
just spent a whole day trying to go through the day and look at
all the ways that our gender affect the ways that we interact with
people and the consequences of the interactions, it would be truly
overwhelming, because you really, you can't escape it. It's
everywhere. It's how you get treated when you go to buy a coke,
and whether the guy behind the counter, you know, is gonna wait on
you faster because he thinks you're a hot babe. Now that doesn't
ever happen to me, and I noticed that I don't get as good a
service. So I think about this all the time, every day. [laughter]
So I think it's important.
And obviously some people want to
dismiss anyone who disrupts this dynamic, because a lot of people
have a lot of investment in maintaining the dynamic as we know.
And that's also talked about a lot in politics. But it's not to
say that we've actually made that much progress, I would contend.
But we know better then to dismiss these people. And from
listening to our panelists we also know that there are lots of
ways to look at gender. And we have to be able to really cherish
that diversity and to nourish that diversity. And I think it will
make our lives a lot more interesting.
My personal challenges around this
issue of thinking about what it means to be transgender started in
1993. And -- this is Sgt. Stephen Thorn, he's a sergeant on SFPD,
and you probably know about him, maybe from reading the newspaper.
And I think it was '93 when an article came out that he
transitioning on the job. And so I read that article, and I said,
"Oh, God." I was really kind of flipped out. And I thought you
know, everyone's gonna think now that butch lesbians just want to
be men, and now what am I gonna do? I mean, it's hard enough to go
to the bathroom, and this just really screws up my life.
[laughter] So obviously I wasn't really making the connection that
in my struggle to try to define my identity and assert my identity
I was offended by someone else trying to do the same thing. So,
ironically it was, I don't know, weeks or a few months later that
I was asked, "Oh, do you want to work at the Tom Waddell Health
Center? We're starting a transgender clinic." I said, "Oh sure, I
can do that." Well, obviously I knew that I had a lot to learn.
So, I think that -- thinking back on my
process it really illustrates a couple of major problems that we
have. Probably all of us have assumptions. One is that lesbians
and gay men understand transgenderism and are supportive of
transgender people, which I think is really probably not the case.
We all have a lot of work to do around that. And the other is that
gender and sexual orientation follow along the same continuum. If
you are just really, really gay, then eventually you become a
woman. And if you're just really, really butch eventually you're
gonna become a man.
So that's not really true. But I am
thoroughly confused by Martha Stewart, who seems to be a really,
really gay man. [laughter, applause] But I don't know. I can say
that, but I can't really prove it!
Okay, so probably in this room I don't
have to argue much that gender and sexual orientation don't
intersect. That while they may work to define one another, they're
really quite different topics. I think it's almost confusing that
we talk about what sex are you, because then it confuses sexual
behavior and sexual activity with gender. And that's probably the
basic place that we're kind of stuck. But I think that where we're
really challenged is where gender expression intersects with
gender or gender identity. Because it's those things that define
-- the clues that we use to define gender -- either how somehow
behaves sexually, how they look, how they conduct themselves
socially, how they behave sexually. And I think that that's
probably where we really get stuck. Because if we can accept that
people can be lesbian or gay, or multiple genders, we still have
these expectations about what gender means. And that if you're a
man, you mow the lawn. And if you're a woman you are, hopefully
straight, and your identity is female, and you're submissive and
feminine, and you only sleep with one person. And that's, I think,
we know, not the case.
So anyway that predictability is part
of, I think, what really challenges us. And it does make life more
interesting when we have that variety. And that fascination is, I
think, what leads us to another trap that we can fall into. And
that is that we translate our experience with transgender people
into something that's fascinating and titillating. And, I mean,
let's face it, I don't get asked that often "What's it like to
work with a Diabetic?" I get asked, "Tell me about your
transgender patients, and who did you see, what did they say, what
do they look like, do they have a penis, and do they have
breasts?" And all this stuff. That's what people ask me about. And
so to try to maintain a respectful and serious attitude toward my
work, I have to sort of translate those opportunities into a means
to educate and inform people. And not just entertain them and
titillate them. Because I think that I see that happen, and we
really have to be careful not to behave that way.
The other thing is that we're really,
like we say, there isn't a body of knowledge to fall back on.
Either if you're a medical provider, if you're a therapist, if
you're a psychiatrist a lot of what's presented we don't all
believe in. There isn't any sort of cohesive information. There's
not good information to help us understand all of this. So we
really have to pay attention to the people that we're working
with. I think the panelists said it the best. That it's especially
challenging probably for physicians, because we want to be in
control. We're used to dominating every encounter with our
knowledge, we're the experts, and we want to maintain that.
Because what the hell else did we spend all that time in medical
school for? But the reality is that you really can't do that. And
you have to give some of that up because it's just -- no one's
ever gonna fit into any particular place that you put them. And so
you spend all this time learning. The visits end up being more
about learning and less directive.(View
the slide)
Just to kind of go back to some of this
-- really we can look at these parallel lines, and there are
probably lots of other ones that we could add to it. But every
person could, you know, falls on different places along those
continuums there. It's not just transgender people who sort of
sample from the smorgasboard of choices of how to behave, or how
to express yourself. Every single person could fall anywhere along
that line. But the reality is that it's mostly with our
transgender patients that we end up talking about it. And so it
creates this level of intimacy that we don't have or expect with
other people. And so it's also more likely to sort of bring up
your own person stuff, and bring your own emotion into it and
challenge that in other basic ways. Because we don't generally --
we generally keep some of those things at a distance and keep them
in a much more clinical context. So I think that's something else
that we have to think about.
The other thing is that there are
transgender people who live very traditional lives. And we have to
keep that in mind, that's it's not just sort of this avant garde
phenomenon that's only happening in San Francisco. You know,
there's Phyllis Schlafley, there's George Bush, who really knows?
And it's possible that they're transgender also. [laughter] So you
really have to start with a blank slate and try to avoid
assumptions that are gonna alienate people. And like I say, it's
really challenging, because we don't know how to diagnose. We
don't know what we're diagnosing. And we're kind of used to doing
that. The thing to keep in mind -- I'm gonna take another two
minutes, one minute, okay -- is that...? [applause] They're late
with lunch. Okay. So the bottom line is that for patients who come
in, I just want to say I'm not thinking about hormones -- for
patients who come in to ask about hormones, they aren't making
that decision in the ten minute visit that you have with them.
They've thought about it for years. And even if you're trying to
put it all together in your head in ten minutes, you have to
respect that they've come there with a lot of knowledge, and a lot
of insight, and a lot of soul searching before they get to that
point of trying to even consider that decision.
So the first lesson is that we need
adequate time to be able to inquire about that, to pursue it, to
try to understand it. And to really hear someone's life story. I
think it's also, there are certain levels of advice that we can
have and some directed questions that we can ask. I mean, the
first thing I think is it's really critical for someone not to be
making that decision in isolation. I try to encourage people to go
out and find support groups, to find social places where they can
meet other transgender people, and try to get them connected. So
they can see if that reflection really does mirror who -- come
back and mirror them. And it's something that they're really
working toward. I think it's important to try to help them
identify who their role models were. And how did they identify in
the past?
Dion
talked about being raised in a lesbian community. And obviously
those contexts will give you some clues about what people are
responding to and sort of what got them to this point. And it's
obviously important for people to find out if they've even
explored living in the opposite gender. Have they talked to their
family and friends? To bring those people that are important to
visit. Because they have questions, too. And they're a really
important part of the process. And they need to understand it. And
they need to hear from you directly. Because there's obviously a
lot of other issues going on for them. And you can't just rely on
the person that you're working with to be able to translate that
information in a good way for their partners.
So, I think there are also some
questions that we have in the back of our minds. And some concerns
that are probably, you know, sort of burning when we try to think
about this decision making. And one is clearly we kind of go back
to where I started. And we have to think, Is this person really
gay, or are they really lesbian? And maybe they just haven't had a
supportive environment that sort of helped to nurture that? And
maybe they're responding to sexual behavior and confusing that
themselves with gender. I mean, everyone isn't -- most people are
well informed, but everyone isn't. And maybe they've come from,
you know, the middle of Timbuktu, and this is all that they know.
And I think that that's what worries a lot of people. I hear
providers talk about that a lot. "Well, I think they're just gay."
And you know, it's okay. I mean I think exists, I think that
happens, but it's just something that will take a little more time
to really pursue. And I think that it's not the majority of the
people that we see.
Obviously some people also, you know,
maybe they're just responding to a fad. And certainly in San
Francisco I hear people say they're concerned about that. And it's
-- the case that any of our patients may lie to us, they may have
secondary gain; but we can't let those, you know, we can't let
cloud our judgment about all of our patients. We can't make those
generalizations about everyone just because they're transgender. I
think we never sort of do that same sort of decision making with
some one who is diabetic or hypertensive. We're still gonna treat
them because they have the illness whether or not they're gonna
take their medication appropriately. We'll check their blood
sugar. We have to sort of apply those same non-judgmental terms to
treatment for a transgender person.
I think, essentially, my overriding
feeling is that really the consequences of hormone therapy are
positive for those people who feel that they're benefiting from
them. I think that basically that's an important part of it. But
the most essential part of it is that someone has a person who
will listen to them, who will be open to them. Because if you are
just living your life in a way that you're being excluded from
sort of the basic rules of society and the basic circles of our
society, that the critical part is just having someone that will
actually listen to you and not ask too many stupid questions.
Because we all are gonna end up asking some stupid questions. But
to be really just be respectful. And that part really just can't
be taken for granted. So I really trust that we all will sort of
take the opportunity to improve the way we provide our services to
our transgender people and also continue to kind of think of all
the different gender possibilities that exist, even for ourselves.
Thank you. [applause]
JoAnne Keatley: So, are there
any questions?
Audience Member: Thank you very
much for your comments. I have a questions related to adolescents.
I'm an adolescent Health Care Provider, and the guidelines say
that people should not get hormone therapy until they're 18 years
old. You know that people distress can last for a long time before
they reach that age, and I was wondering what your comments and
your colleagues comments were about medical treatment and access
to those kinds of therapies for people before they're 18.
LK: It is true the Harry
Benjamin Guidelines, I think they say "rarely" should hormones be
given to someone under the age of 18. If you have, if you want to
adhere to those strictly, it still allows for giving anti-antigens
to male to female patients. But I think that it has to be taken in
a broader context. I mean the Harry Benjamin Guidelines really
aren't meant to be adhered to strictly. They're standards of care,
but I think that when appropriate you have to make decisions that
go outside of those standards of care. And I think that there are
some of us around this city that are prescribing, carefully
prescribing, treatments to adolescents. And I know that Castro
Mission Health Center has a Dimensions Clinic, and they've
actually developed some protocols for adolescents. I only have
about two -- three patients in my clinic that are under 18. And
those are actually patients that are very clear-cut, have actually
had psychiatric evaluation, have been cross-dressing from a very
young age, and sort of fit more of a classic model of being
transsexual or transgender. Obviously, parental support is
important, if the parents are in a relationship still with their
children. But I think you have to be fairly -- a little more
cautious with adolescents. I don't know, it's really so
individual, I can't give a broad answer.
DK: And certainly there've been
published reports out of the Netherlands of success with hormonal
treatment of adolescents. And particularly cosmetically better
results when people start younger. And so that's the -- the
balance is for a, you know, truly transsexual person. The younger
the person starts on hormonal therapy, certainly the better the
results can be. The question comes in with children displaying
gender variant behavior that most of them are not -- don't
identify as transgender as adults. But when adolescents present
very often they do. And so there's the question of, you know, at
what age, in terms of protocols, would you make the determination
that this is a consistent and long-lasting desire to be the other
sex.
Audience Member: I just want to
also comment on that. I have the latest information from the Harry
Benjamin Association on adolescents. And these standards are not
printed, but they are coming, and it's a clarification of the
treatment of adolescents is: "With attention being paid to their
emotional maturity and stage of puberty, rather than their age."
So, I just wanted to say that.
LK: Safety is also another big
consideration. Because I have a patient who is in school and she
is male to female, and she is in school as a girl. And she's 15,
and so she has girlfriends, and they have slumber parties. And she
actually had to, you know, change schools so that she could sort
of start fresh. And so I think it's important to think of treating
as early as you think is really reasonable. Because she's at very
high risk for, you know, for being beat up in school. And I mean
it's very dangerous for her in many ways. So her family is
actually really aggressively pursuing surgery, and she's only 15,
so that's a big consideration. I mean for everyone, but especially
for kids in school.
JoAnne Keatley: I think we have
time for one more question.
Audience Member: Okay, I think
the idea was you have to be very careful. But I think mostly it's
better if they prescribe hormones. Because if they really are
trannsexuals, they end up buying hormones on the black-market, so
it's better for them to get a prescription.
LK: Thank you.